In 2023, a small team decided to take part in UltraBalaton, completing the 211 km distance as a relay.
Alongside their love of running, the team wanted to support a good cause. After learning Máté's story, they decided to ‘sell’ the kilometres they would run and donate the proceeds to support his recovery.
Details:
– We set the price at HUF 1,500 per kilometre.
– Kilometres can be sponsored by bank transfer.
Bank transfer details:
– Account holder: Bakcsó Természetjáró, Természetvédő, Kulturális és Szabadidősport Egyesület
– Bank account number: 11738235–21439652
– Payment reference: ‘ADOMÁNY’ and the number of kilometres you are sponsoring.
50 km Have Already Been Sponsored!
The original appeal describes Máté as living with situs inversus totalis, sometimes referred to as being a ‘mirror-image child’.
What Does This Mean?
According to the original appeal, Máté's heart, liver and ‘gyomorhólyag’ (the term used in the Hungarian source) are on the opposite side of his body. It also describes him as having one kidney, two spleens, a cervical and a thoracic hemivertebra, and a shortened cervical vertebra.
What Is Everyday Life Like for Máté and His Family?
The appeal explains that the shortened cervical vertebra caused his head to tilt to the right, requiring physiotherapy in Kazincbarcika at a cost to the family. His spinal condition also requires ongoing monitoring in Debrecen, as a sudden growth spurt could cause a further spinal curvature requiring surgery.
Because Máté has one kidney, the family attends paediatric nephrology appointments at Panoráma Poliklinika in Budapest. These require laboratory tests and an abdominal ultrasound beforehand. The ultrasound is carried out at MacroKlinika and paid for by his parents.
The original appeal also reported a cardiac enzyme problem that developed the previous autumn. It stated an upper reference value of 500 and a measured value of 3,956, describing this as potentially life-threatening. It also reported a skin condition requiring special bath products and moisturiser. These are the historical appeal's statements, rather than an updated medical assessment.
What Is Máté's Childhood Like?
The appeal explains that Máté cannot take part in combat sports or ball games because he needs to protect his only kidney. Its growth is regularly monitored to check that it is keeping pace with his body.
Kilometres Sponsored